Tuesday, January 12, 2010

Home Again, Home Again - Jiggity Jig!

This is what Jackson says every time we turn into the neighborhood (see title of post). One of the highlights of our last six months was getting home and seeing the excitement on Jackson's face to see his parents and little brother return home. It was awesome.

A few updates on Isaiah.

1. We are now on offense. We asked the doctor to help us figure out a solution to Isaiah's insomnia. For six months, he has been getting up between 5-15 x per night. This is not a typo. We tried everything, from hiring help, to trading off to letting him cry to trying to bring him into our bed (he wanted no part of that) to praying to saying mean things to each other to try to get him to go to sleep. Nothing has worked - until now. We are - under advisement of our physician, mind you - keeping the little night owl up all day. That's right, no nap. He hates it, but it has completely worked. We are on night four of sleeping all night with only one feeding. OK, forget I told you about this. I don't want to jinx it.

2. We have received so much love and support. If we have learned anything from this experience, it has been patience, faithfulness and courage to ask for help. Although Isaiah and our family has an unknown future ahead of us, we choose to be optimistic. Frankly, none of us know what the future holds. Isaiah may be a star football player, American Idol finalist (we love that show) or something all together different. The lesson we have learned is to enjoy our family each day. Tomorrow isn't guaranteed for any of us.

3. Isaiah is on the move. He is rolling from one end of the room to the other. Almost pulling up from a laying down position and will stand against a piece of furniture soon. He is developmentally ahead of where Jackson was at this age. He is an amazing baby!!!!

4.  Tomorrow, we go to Dr. Norman at Integris, our pediatric neurologist in OKC. She's going to de-brief with us on our trip to Houston and hopefully get Isaiah transitioned into a long term medication for his epilepsy called Zonegran. Dr. Wilfong said it may work it may not. Either way, we are still thrilled to have a true diagnosis so we know what we are dealing with. Thank you for the well wishes and prayers. We'll keep you updated.


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